Member Organization Details

FOD Family Support Group

Our mission is connect and network with FOD Families and Professionals around the world and to provide emotional and grief support, Family Stories, practical information about living with these disorders, and Medical Updates to inform families of new developments in screening, diagnosis, research and treatment. In early 2010 we expanded our Mission and grief support to include face-to-face support for any bereaved parent/families in the East Lansing, MI area, not just those dealing with our disorders. Awareness of these disorders is imperative for early diagnosis and treatment, prompting us to be strongly committed to promoting expanded ~ universal and comprehensive ~ newborn screening for FODs (and several other metabolic disorders). We do not want other families to needlessly go through what we have experienced. From our family to yours, we want you to know... 'You are NOT alone! We Are All in This Together!' Deb & Dan Gould Kristen, Kevin & Brian
(517) 381-1940
PO Box 54
Okemos, Michigan 48805